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Switch from letrozole to exemestane
Breast Cancer | Last Active: Nov 9 2:17pm | Replies (46)Comment receiving replies
I fully agree. I’ve always said I’m not doing the “circular medicine” - take this medication, now take this one to stop the side effects of the other one, now take this medication……. Everything here is rock vs hard place. No, you don’t have to do chemo but if you have mets in 2 years, too late to say “gee, I should have done chemo”. This is the same. I really don’t want to have to go through all this again so not sure I want to stop this medication if I don’t absolutely have to BUT there is that quality of life issue. My cancer group is saying 5 years only (claims research shows no difference between taking 5 vs 10 years) so hopefully that holds but things can change as we get closer. Luckily so far, heart tests normal and last bone scan was also normal without taking any bone meds (I declined). So I stay on the meds and try to survive all this that according to them aren’t side effects of the medication. Not sure I would survive without forums like this and knowing it’s not just me.
Replies to "I fully agree. I’ve always said I’m not doing the “circular medicine” - take this medication,..."
I agree with all you say and I have found more sense and support from this forum than from my supposed ‘support’ agencies .
Hi MistyMar,
I'm pretty new here - learning and lurking until now. It's heartening to hear the stories of so many women dealing with the same or similar situations. My admiration to all!
My 73rd birthday is in September. Since I've been pretty much keeping my diagnosis to myself, which is ridiculously isolating, I'm particularly encouraged to hear from so many contributors in the over-65 demographic. I've followed the traditional course of biopsy, surgery, radiation (proton) and endocrine therapy. However, I'm left in a quandary as my current Onc, who was "on the fence" re: chemo, is now telling me, weeks later, he does not support it for me. Not because it will not provide benefit (my Oncotype dx is very high) but due to age, comorbidities (I have a mild ILD and an autoimmune) and whatever other factors he has gleaned over just 2 visits. I know it can take a huge toll on an aging body, making it difficult to judge the risk/reward ratio. I'd love to hear from those who "chemoed" and what the experience was like for you. Certainly never thought I'd be advocating for Chemotherapy for myself but here we are. I want to give this my best shot, not be left with coulda/shoulda and hopefully see my very young grandbabies reach kindergarten! Onc has never spoken with my pulmonologist or done any kind of geriatric workup. He is highly regarded in the area so I'm trying to give him the benefit of the doubt but aside from a lackadaisical approach (I think he may be retiring soon) I'm just not getting the vibe he is out for my best welfare. So, today I start the hunt for a new Oncologist. Apologies for the windy reply. I've been holding thoughts in for far too long!
On another note, has anyway come across any credible information on DIM supplements, the use of Curcumin, etc.
Thanks for listening, Laura
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I took bone med infusion (Zometa) once in April and really don’t want to take it again. Had sever bone pain for several days in my right arm and hand and all the way to my shoulder.