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Ehlers Danlos Syndrome: Can't get diagnosed

Chronic Pain | Last Active: Oct 19 2:34pm | Replies (20)

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The doctor is up in Northern Colorado at UCHealth are just getting around to knowing about EDS because they don’t know about EDS in the dog doctor at a doctor at orthopedic Of The Rockies finally diagnosed me with EDS and then I finally told my primary at UCHealth at Northern Colorado where I live in Colorado and they’re finally researching it and finally getting around to EDS. What did the doctors up northern Colorado don’t know didn’t even hear about EDS. It’s pretty sad that didn’t even know or couldn’t even diagnose me with EDS and I’ve been doing it for years when I had gas I had joint and stuff wrong with my joints and stuff wrong with stretchy everything pointing to EDS from heart problems to G.I. problems to bone problems to eye problems to everything else and they kind of figure it out to pain and migraines to neurological problems. They couldn’t figure it out now they’re barely coming to the conclusion of EDS And Genetics para Northern Colorado.

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Replies to "The doctor is up in Northern Colorado at UCHealth are just getting around to knowing about..."

We live near Portland , Oregon , and here we have Oregon Health Sciences University . I take my daughter to a EDS pain psychologist there , and they do have a few doctors trained in dealing with EDS . The problem is , they have too many clients and not enough doctors . We've been on a waiting list for a very long time . That's why we are considering the Mayo Clinic .