← Return to Living with long-term bowel side effects post anal cancer treatment

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I am so sorry that your bowel movement issues have continued for so long. I completed chemo (2 founds of 5fu) and radiation (30 rounds) for squamous cell anal cancer in early June 2025;and continue to have the same bowel movement issues that were my only symptom for several years prior to diagnosis. My issues are much more manageable as I continue to have 3 to 6 unusual bm’s every AM. I just make all appointments in the PM (ok for a retiree). My cancer involved the internal anal sphincter so I’m happy results are not worse.

Did you doctors tell you that your internal or external sphincter muscles were involved? Sphincter damage could lead to incontinence.

Based on National Institue of health studies regarding cancer treatment and probiotics, I purchased a specific type of acidophilus and bifo probiotics from Amazon. I feel that chemo that kills everything (good and bad), so there is a need to build back good things in intestinal tract that may have been destroyed by treatment. I continue to take extra probiotics and eat healthy as I can still feel chemo effects. Can your doctors refer you to a nutritionist who may be able to test for missing nutrients or help you rebuild your internal micro biome?

I think everyone’s bodies react differently to cancer and treatments. I hope others have some helpful suggestions for you.

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Replies to "I am so sorry that your bowel movement issues have continued for so long. I completed..."

Thank you so much for sharing your experience. Like you, I also dealt with similar bowel issues before treatment, but the urgency and frequency definitely became much worse afterward. Both my gastroenterologist and colorectal surgeon have recommended things like Citrucel and a handful of other options. They help a little, but only to a very small degree.

Unfortunately, I have not had anything close to a regular schedule in years. On top of that, anything that affects my anxiety or mood immediately shows up in my stomach. It feels like a vicious cycle. The discomfort and embarrassment feed the anxiety, and then the anxiety makes the symptoms worse, so you are stuck in a loop.

I tried probiotics for a while, but the cost really added up and I was not seeing much difference, so I stopped. These days I eat relatively well. I have cut out eating out almost entirely and try to avoid processed foods, but I still deal with constant gas and very loose watery bowel movements. On the days they are a little more formed, still nothing close to solid but closer, I will end up going three or four times within a couple of hours because I never feel like I am completely empty.

Most days, I dread the gas I cannot control, knowing it may eventually soil my underwear. For a while wiping only made things worse, so I switched to a bidet, but that also backfired. It felt like water was getting in and then slowly leaking out afterward. I cannot believe I am even saying all of this, because I have been holding it in for so many years. It feels gross, it makes you feel raw and exposed. And if I am oversharing, I apologize, but it has been bottled up for so long that letting it out almost feels like a release.

I am a man and I have tried cutting a woman's pad to make it fit. I have tried tampons. Adult diapers are far too bulky to go out in public. I have not worn a light colored pair of pants in almost a decade. At times it just feels insurmountable.