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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1851)Comment receiving replies
From what my oncologist told me, acinar cell pancreatic cancer tends to not raise ca19-9 levels. I have acinar cell pancan and these levels stay normal. Possibly burislinda also has the acinar type of pancan?
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Acinar cell carcinoma does not secrete CA19-9 so this biomarker is not usable to monitor chemotherapy effectiveness. Only pancreatic ductal adenocarcinoma and mucinous cysts that arise from ductal cells produce CA19-9. In patients whose CA19-9 falls in a range of -3 to +3U/mL, it is a sign they are non-secretors having both negative Lewis antigen alleles Le^a- and Le^b-. The error of margin in the test measurement is+/-3U/mL so when a value is in that range, it is essentially zero.
For those with acinar cell carcinoma, there is the FaceBook group Acinar Cell Carcinoma and a number of us participate in a couple of Zoom meetings of their support group hosted by the SeenaMagowitzFoundation.org. More on the support group schedule of meetings and how to register is on their web page.