The thing that stood out to me in your story was the air mattress. I rolled over in bed one morning and haven't been the same since that day. I've had two children and not even that compared to the pain I felt that day. My right arm and hand hurt so badly, I think it would've felt better to just cut it off at that point. I saw doctor after doctor. I had emg's, MRI's, CT scans, if there was a test to have, I had it. I rode horses, jumpers. I remember one day in particular being on my horse after a good rain. We were in a slow gallop up a hill when he slipped. I got pinned under him and I remember my neck being twisted a bit. Nothing major. Like if I had maybe slept on it wrong. I was young at the time. Apparently, it was a bit more than just a "crick" in my neck. The spinal cord injury didn't make itself well known until the morning, many years later when I rolled over and tweaked it just right. After 3 cervical surgeries, 2 back surgeries, having a pain stimulator implanted (which was removed during one of my surgeries, never helped) taking Gapapentin, Lyrica, opiates, PT, doing anything I thought may give me some relief, I still have the pain today. My was indeed, eventually diagnosed as, RSD at the time, but CRPS. It has spread to my left arm and hand and started on my legs. The pain is better today, but with something like this, I strongly believe that your pain threshold increases. Pain is pain, it hurts. The degree of pain is subjective. At least now, my pain comes in flares mostly. It's always there, but when a flare up presents itself, it will put me in the bed. Still not ideal, but much better than the constant, unrelenting pain that it was and that you seem to be experiencing. Read some of the CRPS stories on Reddit. I think you'll find yourself in some of those. Don't give up. I saw specialists that were puzzled. It wasn't until I needed a new PCP that I got an answer. She recognized it as being RSD almost immediately and treatment began there. One thing that gives me a little relief is compression. I wear arthritis gloves. Something about the compression is almost soothing. Good luck, and don't give up.
EDIT* I was prescribed 2mg Valium that helps more than an opiate ever did. I only take it during a flare up and it actually gives me a little relief.
Can you please spell out all your CAPS (DRPS and RSD) and what they mean, I have been dealing with post spinal issues and see my surgeon for a follow-up in a week and would like to discuss with him my ongoing leg pain. I have almost a failure of the leg when walking, fortunately they have both not buckled at the same time or I will go down again. I keep falling. I am back on Gabapentin, have tried Lyrica and every other night Oxy for pain as too much causes migraines. Tylenol and Advil have created major gastro issues and now I have periodic illuis so also taking laxatives.