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Reason for GFR level to fluctuate from 20 to 57?
Chronic Kidney Disease (CKD) | Last Active: Aug 17 10:46am | Replies (13)Comment receiving replies
My creatinine (a protein used to measure GFR) and eGFR levels were normal range for years, until I got norovirus in December, 2023 while I still had long covid. My eGFR went from 77 in Sept. to 35 in Jan., likely due to rapid onset severe dehydration, high temperature, and inflammation. Covid did result in spikes in high blood pressure, but my resting BP is normal range and no risk factors for kidney disease other than being 70 (active, normal weight, already on a renal diet because of hubby, etc). Going on 2 years later my eGFR ranges from 32 to 45 and my kidney biopsy in June showed moderate scarring of my renal tubes and glomera (filtering cells). I didn't tolerate Lisinopril so one month ago I started 10 mg/day Jardiance, a pricey SLGT2 inhibitor. So far it has changed my average BP from 119/69 to 108/73 (systolic is more important than diastolic for heart/kidney health). So far no change in creatinine levels (which are what eGFR reflects), but that can take several months according to the doctor. Other than some fatigue, I don't have AKI or CKD symptoms. SLGT2 inhibitors don't seem to cause symptoms in me. Diet, avoiding stress, and getting enough aerobic and resistance exercise is important.
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This is helpful for me as I try to maintain Gfr of 44 to 46 since 2020 on my own...when I was told by "kidney" doc over the phone(never saw him {covid restriction]) that lots of people live on 1 kidney and that the measurements were quite loose and not to worry ...but call if needed....which I never did as my gp in 2023 said it was not needed.(she has since retired) I have been able to organize blood testing every 3mo. To track my A1C(pre-diabetic) and GFR with my new NPJune (2025) who so far has been agreeable to keep ordering the tests every 3mos.(had to convince her first) I am a full time professional artist(painter) with regular exhibitions of my work and I find all this stuff hard and discouraging.I will be 87 in Feb and wondering if I should bother with all this stuff if I am likely to be dead and broke by 90? Friends (much younger) say oh don't bother with all this stuff....eat, drink enjoy yourself....this seems like weak minded thinking...but if I end up on a kidney machine anyway and not creating (I would not be wanting to live). I hate that this is taking up space in my brain when time is precious and there are paintings to do...Thinking I should retreat to my cave and isolate.Sorry this has turned into a rant...how does one handle non-serious of indifferent friends/family. I am grateful for my good friends and family. Peace be with us