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← Return to MAC with sinus issues
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Welcome to connect. I'm sorry you need to be here, but think you'll find it a helpful group.
I'be had significant sinus issues intermittently over the years, but don't have nasal polyps and haven't been told my lining is nonfunctional. I'm sorry you are dealing with that. I am responding in hope others see your post.
Like you, I just started Dupixent (different indication) with my loading dose 3 days ago. I am encouraged by some anecdotal stories and one published case report showing an improvement in bronchiectasis. Does your CT show bronchiectasis?
Are you being treated at a MAC/bronchiectasis center? A lot of us have found that quite helpful since Mac isn't a common disease.
Are you doing airway clearance yet?.
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Thank you for your response. Yes, I was diagnosed with Bronchiectasis(BE) in 2022 and CT scans regularly depending on the results.
My most recent pulmonologist prescribed the Dupixient to help prevent the regrowth of polyps. My Rhinologist had suggested it too. I really haven’t experienced any side effects, maybe a slight increase with my sense of smell. The injection is a little painful but over within seconds. That is encouraging if it can show improvement with BE.
I live in Ohio and was referred to my current pulmonologist with Ohio State University Wexner Medical Center this year. She is very experienced with BE and collaborates with their Infectious Disease group. After my bronchoscopy in June, my doctor ordered the vibrating vest and increased my nebulizer treatments to twice a day, same as vest. I’ve been trying to do airway clearance and my mucus seems to have increased after weeks of the vest. I do have difficulty bringing up mucus for a sputum sample. My pulmonologist has recommended postural drainage positions and I’m trying that too.
How long have you been dealing with MAC/BE? Thanks again for your thoughtful comments.
My first ID appointment is Monday, please share anything that you feel is important for me to discuss or ask about. I have my list started. Take care.