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Stopping forteo

Osteoporosis & Bone Health | Last Active: Sep 3 1:10pm | Replies (23)

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@sue417: howdy! I am in a similar situation, a cancer patient just finished 6 months of PRRT with exhaustion & fatigue. I am eager to live now with less tumor burden!
Unfortunately, DEXA has reported diagnosis of osteoporosis in my Lumbar Spine & Right Hip. Being 80 yr old female I agreed to the Evenity 12 month injections and now into my 3rd month. The fatigue is so tiresome and although it is tolerable I urgently wish I had the energy to enjoy life as before my cancer treatment.
I am interested in how you plan to proceed with treating your osteoporosis diagnosis - now and in the future. I know both of us must want to live fulfilling days and avoid bone fractures. I would appreciate your thoughts, if you will share with me. Best to you… dbamos1945

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Replies to "@sue417: howdy! I am in a similar situation, a cancer patient just finished 6 months of..."

Hi
I was diagnosed with osteopenia in 2022 when my first fracture occurred in my spine T8. I was on r e c l a s t infusion which in Canada it is called zoledronic acid once a year I had had it for three consecutive years my bone density had come up quite a bit . my report said I was less likely to fracture then I went through radiation in 2024. My spine fractured again in April 2025 my T9 and T10 . they switched me to this daily shot of forteo going on 6 weeks. I advised my physician Friday I want to get off it and I am waiting to hear from him if I do not hear from him Monday at 10:00 I am going into the office because I am not taking this. I need to know what his plan is. I have read lots of posts regarding this drug on this site and others and a lot of women cannot tolerate it I wake up with severe knee pain low back pain and by the afternoon the fatigue and nausea is crazy. I am not spending 24 months like this. My assumption is he will put me back on my once a year infusion. I will get back to you once I see him and let you know. I do not want to stop without him saying okay this is the plan because if I have had some increase I don't want to lose that but I cannot live like this anymore. As you know going through breast cancer is hard enough and dealing with the side effects from treatment from that and then getting put on a drug that makes you feel horrendously worse not what I want.