@aaroncush

I don't know whether you're frequenting these pages, but I thought I'd try reaching you. I'm still at an impasse with getting a diagnosis for the cause of my peripheral neuropathy after two and a half years. It's not very painful but I'm finding it pretty hard to walk. My feet and lower legs feel pretty dead.

Dr. Goodman wrote my initial assessment after my first EMG/NCS test at Mayo Phoenix 2.5 years ago. Another test a year later basically concurred with his assessment. Then I had a third test later where the neurologist came up with a totally different assessment which seemed wildly off-base to me, but I seem to be stuck with it. (?) He thought the problem was spinal despite my physical history and the test results being at odds with that diagnosis.

Anyway, I'm wondering if you were able to see Dr. Goodman? I called Honor Health and they said he's not taking new patients. But I was thinking that I'm "kind of" an "old" patient since he did my first EMG/NCS assessment.

I have horses and animals and I don't know what I'll do if my ability to walk declines further. Thanks... if you happen to see this.

PS: I also have kappa light chain MGUS, which the heme/onc thinks is unrelated to the PN. I'm not convinced; bone marrow and fat biopsies for AL amyloidosis performed 2 years ago were negative, fortunately.