Lupus

Posted by 559purplepatty @559purplepatty, Feb 10, 2017

I was diagnosed with Fibromyalgia about 17 yrs ago and have severe neck and joint,back pain. I currently take Norco for pain. I have so many of the symptoms of Lupus but why are doctors so afraid of diagnosing this. There isn't really a direct blood test to check for Lupus but I have like 22 out of 25 symptoms of Lupus. Does anyone know of any specialist in California? They just diagnosed my 15 yr old granddaughter with fibro today and am still waiting on xray results. Same with my daughter. I certainly don't want to pass without ever being diagnosed . I am 62 and also a kidney cancer patient. Lost 1 kidney and 6 yrs later 1/3 of my other kidney. I saw a Rhumatoid doc but when I ASK HER ABOUT lupus...SHE SAYS no...sHE IS NEW STRAIGHT OUT OF SCHOOL. Anybody have any suggestions?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Jen, Alumna Mentor | @sandytoes14 | Feb 10, 2017

Hello @559purplepatty, I’m glad you have come to the Connect community for support. While I’m not familiar with Lupus, I found there is a blood test for Lupus. I suggest you check out this article for more info http://mayocl.in/2kAFiIu

I would like to introduce you to a few members who have discussed lupus @v1crew @jewel8888 @tbeckys @WendyAnne

You may also be interested in conversations taking place
Living with one kidney: http://mayocl.in/2kXuQM4
Fibromyalgia: http://mayocl.in/2hgUGcv
Kids/Teens: http://mayocl.in/2jeGhih

What type of symptoms are you having? Did the rheumatologist you saw do any tests?

Justin McClanahan, Moderator | @JustinMcClanahan | Feb 15, 2017

Hello @559purplepatty. I just wanted to follow up with your post about possible diagnosis of Lupus. @sandytoes14 provided some great links that specifically deal with the things you discussed that have been diagnosed.

You may also want to check out the following discussion that deals with undiagnosed auto-immune disorders. In this discussion, you will meet other members who have talked about the potential of having Lupus but they also have not been diagnosed yet. You can find that discussion here, http://mayocl.in/2kpXUwp.

@559purplepatty, have any of your physicians explained why they are reluctant to diagnose you with Lupus?