← Return to Are there suggestions for living with pure autonmic failure (PAF)?

Discussion
sjhalvorson avatar

Are there suggestions for living with pure autonmic failure (PAF)?

Brain & Nervous System | Last Active: Sep 11 9:55pm | Replies (34)
Comment receiving replies
Profile picture for garychicago @garychicago

Hi, I take 18mg of Atomoxetine in the morning for overall energy improvement and some help with the dysautonomia.

Have you tried compression stockings. I have gotten some medical grade stockings that go up to the top of my thigh. These help somewhat with the dysautonomia. The brand name is Jobst and I got them from a specialty pharmacy who also measured and fitted them. I too have heat intolerance and just try to stay out of the sun on hot humid days. I too get the hot and cold feeling.

It is a weird disease with disparate symptoms.

Good luck,

Jump to this post

Replies to "Hi, I take 18mg of Atomoxetine in the morning for overall energy improvement and some help..."
rory922 | @rory922 | Aug 15 8:58pm

Thanks much for your input
and suggestions. Yes, I do have Jobst compression hose-I was told to get the pantyhose type and for summer heat, the abdominal binders. I also take Trospium Chloride capsules for incontinence-which is the bain if my existence! Ive been told it helps curb frequency but can cause teeth to decay- and I certainly dont want dental problems. I agree with your analysis of PAF-it is weird and very few people, including medical personnel, have ever heard of it.

VIEW AND REPLY