Hello @mjontour. I'm now at 2.5 years with PMR.
@73 now, down to 1mg (starting today) for next two months. Just last week fatigue and brain fog kicked in for about three days. It seems to happen after I do a little too much yard work. But not always. Lately when I think I've figured things out trying to separate PMR from Prednisone withdrawal, my symptoms get confusing. I only get about 5 to 6 hours of interrupted sleep because of the bathroom trips. Usually get another hour and a half of uninterrupted sleep mid morning. I'm currently not experiencing specific PMR pain for at least the last 7 months. Only sporadic, mild to moderate joint pain and lower back pain from hx of l-4 l-5 B. disc. My energy levels have been slowly increasing since the time I noticed the absence of the classic shoulder and hip pain. My doctor did mention the possibility of staying on a low dose of prednisone if I couldn't wean completely without complications. We're both glad I've made it this far with only one flare up in the first year (Sept. 2023). Unfortunately I also have to deal with a flare up of my diverticulitis about 2 weeks into the drop of Prednisone dose. When I got down to 6mg. (been tapering by .5mg since I got down to 5mg) I did notice my body having more side effects by tapering each month. Went to two months with better results. Don't think I'm out of the woods yet. Pressing forward. Might permanently need that 1mg bandaid for my lower back?
Best wishes to you on your journey.
Ernie