I was diagnosed with PMR/GCA in July 2024 and began 60 mg. of pred. With that dosage of pred, I was sleep deprived. I would go to be early, wake up hourly to go to the bathroom, then couldn't fall back asleep until it was time to make another trip to the bathroom. I would get out of bed at 4:30 a.m. By 11 a.m. I was ready for a nap. I'd sleep for a couple of hours. This all improved, as my dosage was tapered down. That being said...

Now, I'm at 4 mg. I definitely have more energy than last summer. I tell people I'm 100% better than last summer, but I'm only about 50% of my pre-PMR baseline. I get an Actemra infusion every four weeks. I'm a morning person, so I try to do my activities (golf, pickleball, bike) then. Afternoon, I'm ready to relax in my recliner and close my eyes for a while. I noticed that I was gaining more energy this summer and I was happy that I could resume some activities that I hadn't done for over a year. Then, I got Covid in mid-July and the symptoms lasted 3 weeks. Since then, I feel I have had a set-back in my energy level. I'm hoping that it will pass, as time goes on.