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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: 6 days ago | Replies (641)

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Profile picture for sdiane @sdiane

Thanks for your comment @ray666. That makes sense. I have heard that to get a diagnosis they have to perform nerve testing which is really painful. Is that mandatory, or can they find out what type of Neuropathy it is with other methods? I do have a low pain tolerance unfortunately.
Thanks again. 🙂

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Replies to "Thanks for your comment @ray666. That makes sense. I have heard that to get a diagnosis..."

Hi, Diane

I've had nerve testing done three times in my life and I never found it to be especially painful, but of course we each have different tolerance levels when it comes to pain. I'm hardly a macho guy; I'm the kind of guy who has to look away when my blood is drawn. 🙂 Unforunately, I know of no other way of obtaining a proof-positive diagnosis without having to submit to nerve testing. There may be other ways; it's just that I don't know of any.

My very best to you!
Ray (@ray666)

@sdiane ~
Ditto to what @ray666 said about the pain involved in the nerve study testing. My experience was that it was not a long, drawn-out endurance of pain but rather a series of annoying "sting-like" responses to some kind of stimulus targeting particular nerves or locations of nerves. I'm no fan of pain, but I wouldn't hesitate to repeat the procedure if it sheds light on the problem. Come to think of it, I did have repeat testing, but this time on the upper limbs rather than lower which were the first to be tested. You can do this!! ~ Barb