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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 2 3:09pm | Replies (781)Comment receiving replies
@loribmt you are so helpful. Thank you for the information. It certainly seems a small thing to reduce risk and potentially achieve remission. I have read no drinking alcohol or getting tattoos as well. Both of which are no problem. We do have a wonderful dog but I know my daughter would take her. I have an appointment with the BMT physician in September and have quite a few questions to follow up on. I went running around Como Lake this morning and thought how wonderful it would be to not have this anemia and run the way I used to for longer mileage. That would be a great victory for me. Thank you again for your help! I am also happy to assist in your mentoring if you encounter other Myelofibrosis patients. Betsy
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Hi Betsy, If all goes as planned the anemia you suffer from should be resolved after a BMT. The bone marrow gets a clean slate to start anew.
Of course, there’s no guarantee that you’ll be able to run marathons after your recovery, which can take a year or so. Though I know of a biker who made it a goal to pedal the 100 mile marathon to celebrate year one. And another member here in the forum, just completed an epic trek to the top of a 14,000+ mountain at a little over 2 years post BMT. That news blew me away! At 71, I’m still very active, walking around 6 miles daily, also biking, exercising, weight lifting, and ‘some’ gardening…not like I used to. Full disclosure, I do have days where I completely plop. It may take a day or two to fill to refill the depleted reservoir. BMT or just old age?? 👵🏻
For me, personally, there were no other options available. So I did it for the moments I hadn’t lived yet. ☺️
Betsy, please feel free to jump feet first into any of the discussions in the forum and especially the blood cancer support group with your background with Myelofibrosis. We’re all here to help each other along through our shared experiences.
Enjoy your morning runs around Como Lake! My daughter lives near Lake Nokomis. Pretty areas!