← Return to Newly diagnosed with invasive pleomorphic lobular cancer
DiscussionNewly diagnosed with invasive pleomorphic lobular cancer
Breast Cancer | Last Active: Oct 4 3:16pm | Replies (24)Comment receiving replies
Replies to "I was finally able to see my oncologist yesterday. He is recommending chemo, radiation, and hormone..."
Hi maggiejinx,
I was diagnosed with pleomorphic ILC grade 3 in June 2024. Went through mastectomy surgery with positive margins, chemotherapy, a second re-excision surgery with negative margins, radiation and now aromatase inhibitor with Verzenio. I seem to be able to tolerate the aromatase inhibitor but have severe carpal tunnel syndrome with Verzenio. Supposed to be on the Verzenio for 2 years. I don't know anyone who has this pleomorphic ILC either. I'm considering just quitting the Verzenio as I have insomnia, fatigue and the carpal tunnel which keeps me up at night, but of course, don't want to put myself in jeopardy of a recurrence. Anyone relate???????
Thanks