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PRINZMETAL ANGINA/VARIANT ANGINA
Heart & Blood Health | Last Active: Nov 19, 2018 | Replies (78)Comment receiving replies
Yes I have Has Coronary Artery Spasms aka Variant Angina, PRINZMETAL Angina since I was 41 and am 63 now. I had NSTEMI dec 2016
We have support groups on the following facebook groups many have both Coronary Microvascular Disease (MVD or CMVD)
& CAS Cornary Artery Spasm
'Coronary Artery Spasms' 'coronary artery spasm (prinzmetal's angina) support group'
I was pretty stable with only a week or so of attacks every few years until 2010. When I developed hypoxia, Tachy/Brady. Hypertensive Emergency. I was referred to and traveled to Mayo AZ & Rochester both. I saw Dr. Abhiram Prasad until he left Mayo and went to UK. I then diverted an airplane flying back from Mayo. SO I then worked my way up the Colorado University system to top Cardio & Pulmonary and was then Referred to National Jewish Health NJH Denver. NJH it was detremined that I have not Only Coronary Artery Spasms aka Variant Angina (CAS) , Coronary Microvascular Disease (MVD) but also tracheobronchomalacia (TBM)., fibromuscular dysplasia (FMD) renal arteries and now a autoimmune issue They say Most Likely relapsing polychondritis. Meds are NIFEdipine 60 mg 24 hr tablet Take 1 tablet by mouth daily.8 PM Coronary Artery Spasm (CAS), Crestor 5 mg
verapamil 120 mg 24 hr capsule : Take 1 capsule by mouth nightly IN AM ****. Coronary Artery Spasm (CAS)
spironolactone 25 mg tablet Take 1 tablet by mouth daily.Reserve Potoasium
aspirin 81 mg EC tablet Instructions: Take 81 mg by mouth 3 times daily. when angian chew 3 as well
Coronary Artery Spasm
IMDUR ,isosorbide mononitrate 120 mg 24 hr tablet Take 1 tablet by mouth morning for Coronary Artery Spasm
arginine HCl (L-arginine) 1,000 mg Tab Instructions: Take 3,000 mg by mouth 3 times daily. , Potasium, Magnessium,
with attacks I take NIFEdipine 10 mg liquid gel capsule: Take 2 capsules by mouth 20 min apart up to 3 times daily as needed (for cp if sbp>90).
NitroGLYcerin spray 400 mcg/spray: Place 1 spray under the tongue every 5 minutes as needed for angina to 3x. So Nifedipine then 3 nitro spray then Nifedipine. Then I carry a leeter from my Cardiologist that stats I have VAS & MVD and if I present that even without ECG changes or increased Troponins I have CAS with cardiac flow deviation that causes my angina. It goes on to say I should be given IV Nitroglycern and remain on it until I can be titrated down with no angina.
Replies to "Yes I have Has Coronary Artery Spasms aka Variant Angina, PRINZMETAL Angina since I was 41..."
@cherfenn. Thank God for you❤️ Requesting a support group. I have seen Dr Lerman and he has spoken with my local cardiologist. I have a Spinal Cord Stimulator almost 2 years ago and now they have done all they can do. It has to be bad for me to go to the ER for the same reason ER Drs may not know. Some of the ER Drs here know bc they have seen me many times. My spasms back up the blood to the point my carotid arteries swell and my voice can be hoarse to no voice at all. I've had 2 heart attacks. The pain is almost unbearable
Have you seen a Vascular Disease Specialist? I encourage you to see one. Did they look for Fibromuscular Dysplasia in you? Mayo missed my Fibromuscular Dysplasia.
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The letter is because so many Physicians just do not understand this disease and dismiss patients and send them home with angina. My cousin Joe died from a complete occlusion from his first attack. I have friends in Cardiac Rehab that have had multiple MI's one had 6 because the ER's kep sending her home with angina. I have asked Dr Amir Lerman. Mayo Rochester MN to help facilitate a support group there where people can get advice and help. As well as referrals. I have met several physicians familiar with CAS at University Colorado, National Jewish, Avera Cardiac Hospital Sioux City SD, Langlade Hospital Antigo WI, Sutter Central Valley Hospital Modesto Ca, Stanford University Medical Center. But I have ran into more Emergency & Cardiac Physicians that do nto keep up with the research and just do not understand that even without increased cardiac enzymes, even without ECG changes the heart is being damaged. Many think that ECG has to have large ST segment increases and that is not true either. When I have spasms I can have no ECG change shown via heart cath with spasm or any of the following, T wave increase or inversion.05. flopping Twaves, various blocks, QRS or R deviation, Axis deviation particularly if it is LAD, flattened waved (In Cardiac Rehab we see the waves flatten then the angina starts often), and more