If you have found a good neurologist, you are in good hands. I've thought back over the past few years and wondered what I would have done differently. I honestly feel that one of the key decisions would have been to find a good neurologist, no matter what. As I think back over time I cringe as some of the advice I was given. One neurologist told me to use a CBD cream, and my seizures would go away. They didn't. Another told me to try acupuncture, and it would minimize my seizures. It didn't. Then I had the ones that would just stack one ASM on top of another to the point I was on four ASMs at the end. We all know how that worked. Honestly, it was only when I got into the Mayo family that I was put on a strong foundation to move forward.

My local neurologist is just a bystander in my care at this point. He told me he only treats seizures not people. BTW he is the neurologist who ghosts me. It's funny, I saw him at Costco one day and he avoided even making eye contact with me. I go to Mayo and I see one head neurologist who I hadn't seen in six months, and he stops, remembers me by name, and even asks about my family. That is the Mayo difference.