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Orgovyx & Gynecomastia

Prostate Cancer | Last Active: Aug 14 4:58pm | Replies (16)

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I’ve been on ADT therapy for 7 years following prostatectomy and radiation. Started off with Lupron then Eligard then a vacation. PSA started doubling every 3 months then I was put on Orgovyx for 2 years. I started getting mouth ulcers to the point I was on a liquid diet much of the time. Along with this my blood count bottomed out. No proof whether this was coincidental or not. Had swelling in my throat and tongue area so I was switched to Xtandi. I started having mild seizures and man boobs were to the point I was embarrassed. Many good reports on both these pill forms of ADT but just not good for me. I’m on vacation now for two months and PSA is rising and doubling every 4-5 weeks. My oncologist is considering Lupron once again along with a secondary treatment. I hope Orgovyx works great for you it just didn’t like me for some reason. I encourage you to be positive and don’t let this ugly disease define you. Good luck

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Replies to "I’ve been on ADT therapy for 7 years following prostatectomy and radiation. Started off with Lupron..."

Talk to your doctor about Nubeqa (Darolutamide). It’s a lutamide like Xtandi But has many fewer side effects. It also doesn’t pass the blood brain barrier so it doesn’t cause brain fog.

I’ve been on it for two years and after 15 years of prostate cancer, I’ve been undetectable for 20 months. I know at least an dozen other people over at ancan.org Who are on it either standalone or with ADT. In every case they’re undetectable it works so well.