Hi, sdiane (@sdiane)

I was diagnosed (via EMG) as having chronic idiopathic axonal (large-fiber) polyneuropathy. That's a mouthful, I know. 🙂 For about 10 years before my diagnosis, I was having balance "issues." Eventually, I started various balance workshops, online and in-person.

The difference for me in how I related to my wobbly balance prior to my PN diagnosis and since my diagnosis is that prior to my diagnosis my attitude was, "Dammit, how many more of these %^$#& workshops do I have to take before my balance is '100% perfect' once again?" and my attitude post-diagnosis (now that I know nothing will cure me) has been, "At least my balance hasn't worsened––in fact, it may even be slightly better––thanks to all of these workshops I've been taking."

So in this one way, for me, knowing what I've got has made a difference: in my attitude, not a cure, simply providing me with a relaxed understanding of the value persistent balance work.

I wish you the very best!
Ray (@ray666)