Welcome @sdiane, I felt the same way for a long time, sort of "what's the use" but since joining Connect back in 2016 and learning what other members have shared, I feel it's better to seek a diagnosis even if you may end up with no new treatment options. Maybe it's just the comfort of knowing and certainty. I had always leaned a little towards something related to diabetes causing my neuropathy even though I've never been diagnosed with diabetes. I struggled with weight most of my adult life and only within the past 6 years got it under control. That's when I learned about the metabolic syndrome which was never mentioned by any of my primary care doctors who kept telling me I was pre-diabetic.

I shared my weight loss journey in the Low-carb health fat living. Intermittent fasting. What's your why? discussion here - https://connect.mayoclinic.org/comment/336050/. If you want to learn a little more about the metabolic syndrome and it's connection with neuropathy, here are some references I've found helpful:
-- A comprehensive definition for metabolic syndrome
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2675814/
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
-- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/
What's the symptom that bothers you the most? Have you found anything that provides some relief?

Hi, sdiane (@sdiane)

I was diagnosed (via EMG) as having chronic idiopathic axonal (large-fiber) polyneuropathy. That's a mouthful, I know. 🙂 For about 10 years before my diagnosis, I was having balance "issues." Eventually, I started various balance workshops, online and in-person.

The difference for me in how I related to my wobbly balance prior to my PN diagnosis and since my diagnosis is that prior to my diagnosis my attitude was, "Dammit, how many more of these %^$#& workshops do I have to take before my balance is '100% perfect' once again?" and my attitude post-diagnosis (now that I know nothing will cure me) has been, "At least my balance hasn't worsened––in fact, it may even be slightly better––thanks to all of these workshops I've been taking."

So in this one way, for me, knowing what I've got has made a difference: in my attitude, not a cure, simply providing me with a relaxed understanding of the value persistent balance work.

I wish you the very best!
Ray (@ray666)