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helendee (@helendee)

It all started with a pilocytic astrocytoma...

Brain Tumor | Last Active: Nov 17, 2018 | Replies (12)

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@lynda1992

Hi kmr3,

Glad to hear you're doing since switching medications.

When I had that seizure a few years ago, I was put on Keppra, too. It did not agree with me! Being irritable & tired to name just a few problems…. My doctor put me back on phenobarbital. (I was taking that drug before my surgery.) I'm on a low dose, but it seems to be working. So many of these seizure drugs can make you feel like a zombie. Like after I get home for work, I'm exhausted. If I don't keep moving, I'm worthless! What about you?

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Replies to "Hi kmr3, Glad to hear you're doing since switching medications. When I had that seizure a..."

Early afternoon is my time for exhaustion. Even caffeine doesn’t help! But moving around does seem to help.

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