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Hello Aaron @aaroncush, Sorry to hear that you are struggling and haven't had much success finding something that helps. I found one of your earlier posts that did a good job summarizing your journey. I wonder if it might be good to take a list something like what you have been through so that you can discuss what you have already been through to see if the doctor can come up with some additional testing that may help with a treatment. Here's the post you made back in Dec 2022 - https://connect.mayoclinic.org/comment/780532/. Not sure if you like to plan your conversations with your doctor but I have found on occasion that it has helped me. Here's some suggestions from the Patient Revolution site - https://www.patientrevolution.org/tools.
Replies to "Hello Aaron @aaroncush, Sorry to hear that you are struggling and haven't had much success finding..."
Thanks John - yeah definitely need to plan my visit. I am just conflicted on pushing for answers vs pushing for better quality of life - ideally I would like to thread the needle and do both. Dr. Goodman is no longer at Mayo so I suspect time with him will be more limited.
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I just took the advice by people on Connect to see a podiatrist. I did that and told him all my symptoms, even though some are in my entire leg after anterior total hip in 2023. He is sending me for a new EMG as he seemed to not like the one done at another clinic. That guy was a freak, not doing the entire leg, couldn't get the machine to work and jumping around like a kangaroo. He actually examined my feet and calf, which gets terrible cramps. I'd suggest that route if you can. I didn't ask my doctor for a referral. I was able to schedule him online without a referral. Good luck.