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helendee (@helendee)

It all started with a pilocytic astrocytoma...

Brain Tumor | Last Active: Nov 17, 2018 | Replies (12)

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@tdavistexas

Hello, my prayers are with you and your son. How is he doing? My son, 2 years ago at 15 years old (now 17 and will be 18 in October) also had a seizure at school (March 2016) and a month later removal of a pilocytic astrocytoma in the left parietal. He was back at band camp 2 months later and now doing wonderfully. We have had follow up MRI's and everything looks good so far. We will have another this month. Not a day goes by that we do not think about how scary it was going through that and what the future might hold. He is still on Keppra and is trying to taper down the prescription. I would like to hear your updates and another others here with their stories.
All my best and prayers,
Tammy & Aidan, Texas

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Replies to "Hello, my prayers are with you and your son. How is he doing? My son, 2..."

Welcome to Connect, @tdavistexas. So good to hear your son's and family's story. I can imagine that one never loses that feeling of "could it happen it again" and what the future might hold. It really does help to hear from others. It would appear that @markelia's daughter and your son share a similar timeline. It must be reassuring to read Linda's story.

How often does your son have follow-up MRIs?

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