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It all started with a pilocytic astrocytoma...Brain Tumor | Last Active: Nov 17, 2018 | Replies (12)
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med BBI608 3) treat with one of targeted meds that attack mutations in my son’s tumor. He had genetic testing done on tumor.We are petrified and very confused.Thanks.
Hello Colleen,It was confirmed as benign in 1989. The tumor that returned at the same place in Dec. 2015 was called Grade 4 despite several benign characteristics. After a year of treatment it appears that there is now a small recurrence at edge of surgery site. Treatment options are to 1) remove 98% of recurrence 2) follow with clinical trial med