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DiscussionCaregiver for spouse with MCI (Mild cognitive impairment)
Caregivers: Dementia | Last Active: Aug 24, 2025 | Replies (126)Comment receiving replies
Replies to "Those feelings of fear and loneliness are familiar to most of us. After the diagnosis, anger..."
I see our situation in much of what you wrote. My husband is also very mild-mannered, and I recently saw an outburst directed at a family member. That is rare, and as a result, very surprising. Pointing out misremembering is something I need to work on in myself…I am a work in progress. 😊 Also, thankfully, the changes in my husband have been slow and gradual…I like to remember that not everyone diagnosed with MCI advances to Alzheimer’s, but his older sister passed away from Alzheimer’s 2 years ago. We were snowbirds also, but as of last year, that has stopped. We will stay in the northeast, near family. I find being out of familiar surroundings is stressful for him. And your words “Let it go” are so very important. Thank you again, for your post! Be well.
Most of us have experienced fear and loneliness, anger, depression, resentment, the whole list. We took are snowbirds or at this point I should say I am. I took my husband with me for as many years as I could. The last time was three years ago. I drove to Key Largo and then flew home and flew back with him. At this point the challenges are just too great and I can no longer do it. He resides in nursing care since January. Disagreeing with him or correcting him only leads to anger and frustration for both of us. It took time to learn not to but you will get there. Just remember it isn't him it's the disease. Having a specific diagnosis also helps eliminate some of the fear by learning what to expect. It seems to me that a diagnosis of MCI just means he isn't far enough along for the actual diagnosis. It's like Parkinsonism. Waiting for things to get worse so you can figure out the name of the road you already know you are on.
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How grateful am I to get a response like this so appreciative. I haven't had the anger set in. For me it's this incredible fear, "I don't know what I don't know" and my mind, just keeps predicting the worse outcome. Which is odd since I"m usually so, so positive. Yes, the problem solving skills are an issue for my husband. Last night's disappearance where he was angrily sitting at the community pool alone and I didn't know where he was. I had to take the car out to find him. Hearing that the changes happen slower, is a positive for me to have faith, and hope, that whatever will be, will be. Keeping things on an even keel is right. And I think you are great about the disagreeing on unimportant things, I think I'm so frustrated, that I just blurt out stuff that really isn't right....My husband is very mild mannered too, I wish I could say the same for me, especially going through this. But reaching out to this group, I knew was the right thing. Thank you for you, today. Your words mean so much to me. Thank you for sharing.