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Thank you for posting your positive experience.. I agree patients should hear those as well.. the ones of us that are experiencing the worst of course are here trying to find answers.. which I hear effects only 1-2% of patients!
Important to hand an open conversation of all side effects, even the low percentage, you could be I. That category!
I’m so glad it was successful for you .. thank you for your comment … I need to be more positive seems I’m pretty negative at this point because of my pain..so thank you for sharing the positive thoughts!!! Hugs to you!!

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Replies to "Thank you for posting your positive experience.. I agree patients should hear those as well.. the..."

@annms01 Thank you so much for your kind words - that's very generous of you. I'm so sorry you've had a rough go of it! Unfortunately, there's no way to predict that and you're absolutely right, I could have been you. I've been lucky so far, but who knows if I will experience side effects later on? I'm very grateful for those who talk about that aspect of treatment - it's vital for us since our care team rarely discusses potential side effects and also seem to be unaware of how to treat them. Just remember we're here for you and you'll get through this. You sound like you're very resilient even though I'm sure it doesn't feel that way when you're in pain!
Best wishes to you moving forward!