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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 2 3:09pm | Replies (781)Comment receiving replies
Replies to "Good morning, Diane…just breathe… I know you’re holding your breath the next couple of days and..."
Ahhhh Lori so good to hear from you.
Yes, I am a ball of nerves. Yesterday we went to sign consents & go to an after-you’re-discharged’ class.
It was overwhelming! Sensory overload! I like my Dr but I wish he would say things like your Dr said to you. I feel like my dr’s approach is more ‘dry’; he focuses on the side effects, GVHD, etc. Maybe a little too much. I asked him yesterday ‘how about some success stories? That’s what I want to hear’! Oh yes- he had those, too.
And then I get a visit summary on MyChart today & it’s got all this stuff in about tools used to evaluate mortality, what my ‘score’ is & so on. Well I could’ve gone all day without seeing that.
But, to not go forward with the transplant would not be wise for reasons you, I & others have already discussed.
Found out my donor is from Poland, a 24 year old male. ☺️. I can send him a thank you note through my team if I want after I receive the cells.
Yes, I am scared silly & just want to get on with it. Sure am I have y’all to talk to!