← Return to Treatment options that have worked for Small Fiber Neuropathy

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Profile picture for lindah007 @lindah007

I was diagnosed a year ago with small fiber neuropathy. It is believed to have been an autoimmune reaction to a rabies booster shot, however there is no way to prove that- but it began 3 days after the shot. I have tried various medications and presently doing IVIG therapy every other week along with Cymbalta and Lyrica. The medications have definitely numbed my pain, and I am not finding a huge difference from the IVIG Therapy. I have been doing the IVIG every other week for a little over 6 months. I have heard it can take years to help. Have anyone else heard of any treatments that can help heal the body?

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Replies to "I was diagnosed a year ago with small fiber neuropathy. It is believed to have been..."

Welcome @lindah007, I'm sorry to hear that you developed small fiber neuropathy as a reaction to your rabies booster shot. It can be a struggle finding a treatment that helps and works for everyone with neuropathy for many different reasons. The Foundation for Peripheral Neuropathy has a lot of good treatment information that you might find helpful:
-- Pain Management & Treatments for PN: https://www.foundationforpn.org/treatments/

You may also want to look through the many different discussions and comments from members when searching for "small fiber neuropathy what helps" - https://connect.mayoclinic.org/search/.

Have you looked into any complementary or alternative treatments?

HI, I'm sorry you are suffering with this. I don't have it but my husband does. He wasn't open to it at first, but has found that thc/cdb gummies help him relax and sleep more deeply. No side effects, etc, especially since he takes a very small amount - 5 to 10 mg. We're in a state where this is legal, not sure if you are able to try this. If you are open to it and it's legal, a very small amount of a hybrid strain (2mg or so to start) might at least distract you but not leave you with a high feeling. I know cbd alone is out there and drug testing can be a problem, but personally believe both thc and cbd work best together.

@lindah007 I’m having same thing started right after rabies vaccine with rabies immune globulin. I’m now bouncing around from rheumatologist, ENT,
Neurologist.
Have you found any relief? My
Toes are essentially numb, fingers and knees tingly all of the time. Plus I have high cardiolipins.