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Daughter recently Diagnosed - Could she outgrow it?
Epilepsy & Seizures | Last Active: Aug 31, 2025 | Replies (21)Comment receiving replies
@santosha - A unique thing to think about but we don't have enough to go off of. She was late (~15 days / she is not active) getting her period and got her period that evening following the seizure. Can I get more information on how you have been able to control your seizures if she does end up with Catamenial Epilepsy? They say some do not work with seizure meds. Anything we can do medication wise or even homeopathic/Naturalpath wise to get in front of this? I watched her like a hawk when her ovulation hit and luckily nothing but concerned regardless. Is it possible she has just a low seizure threshold and that 15 day late bumped her hormones up like a spike and thus seizure, meaning if she stable and starts normally for this next one, she might be OK. Another ask is whether they have tied any of this to endocrine disorders? All the chemicals out there mess with our hormones so much. Any theories there? She has very low HR / BP and other very similar symptoms to some endocrine disorders, but docs are not wanting to test any of that. Says her blood work looks ok.
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@melissa1234
Hi Melissa,
Thank you for sharing more details about your daughter's situation. I apologize for the delayed response. I'm glad to see that @colleenyoung has already provided helpful information about scheduling at Mayo Clinic.
I'm sorry to hear your daughter experienced side effects with her first pill of Lamotrigine. The initial weeks on a new anti-epileptic drug (AED) can be particularly challenging as the body adjusts and various side effects may emerge. Finding the right medication and dosage often requires patience and persistence - something I've experienced myself. I'm also super sensitive to drugs since childhood, having been mostly treated with homeopathy whenever possible. Fortunately, my current doctor, who understands and respects my medication sensitivity, treats my epilepsy below the typical adult dosage.
Regarding catamenial epilepsy, when I was diagnosed with it, my epileptologist worked together with my gynecologist to find a solution. Together, they prescribed a continuous birth control pill for five months to interrupt my menstrual cycle, which significantly reduced my hormonally-triggered seizures. Since your daughter is younger, this approach may not be appropriate for her. So, please discuss it with both her neurologist and gynecologist. I'm curious to know - does your daughter have regular menstrual cycles? Mine were typically irregular since my teenage years.
Thank you for sharing the details about your daughter's EEG and MRI results. If I understand correctly, the EEG was performed during an emergency while she was already having a generalized seizure, right? Is it possible that the seizure began as a focal seizure at home and had already progressed to a generalized one by the time it was monitored at the hospital? Has she had any follow-up EEG testing since then? If so, were potential triggers tested during the exam - things like sleep deprivation, hormonal timing, flashing lights, etc?
I hope you will soon get the answers to many of your questions from specialized epilepsy doctors.
Chris
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