← Return to Daughter recently Diagnosed - Could she outgrow it?

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Thank you Chris! @santosha We just tried her on Lamotragine ER, she took her first 25mg pill on Saturday and ended up with a low grade fever, she also felt horrible...lethargic, couldn't get out of bed, when she stood up, she fell back down, no balance, she said she was very weak, extremely weak. Spent the day in bed. I called neuro to see if I give it to her again the next night maybe at night and her neuro said to hold until I saw her this next week. Fever left in evening and then when drug wore off next day she was fine. I am very scared that the best of the seizure meds had a significant impact on her at the lowest dose. I know I run super sensitive to drugs, I normally can only tolerate 1/4 of the lowest of drug meds (I used clonazepam periodically for sleep and take 1/4 of lowest dose). Her EEG showed across the brain - no specific areas - generalized charges. This was taken after her first seizure at 13 which she had due to influenza A. Her MRI taken at the ER was sited as being normal. I of course want all this re-run again as it has been almost 3 years with no symptoms but this next seizure. I see a new neuro next week, but still would LOVE to see how I can get in with a consult from Mayo and to get on that wait list. Thank you for tagging Colleen. @colleenyoung - I would love to hear from you on how I can get a consult with the Mayo team. She is a bit of a unique case. In between her seizures she went through a lot of rollercoaster items that could have easily kicked off a seizure but didn't. Including: Getting her period (which happened at 14.5) and emergency appendectomy which ran 4 days at childrens, staying up late late with friends, being stressed to the hill with dance competitions, travel, etc. I do wonder if she generally has a lower seizure threshold and her hormones are fluctuating, but you would think I would have seen something when she started her period and during that long period of stabilization. Her old Neuro seems to just think it is Generalized Seizure Disorder presenting slightly off (she was young for her first one and nothing then after that). I am pushing to rule other issues out.

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Replies to "Thank you Chris! @santosha We just tried her on Lamotragine ER, she took her first 25mg..."

@melissa1234, my apologies for the delay in responding. To start a request for an appointment at Mayo Clinic, you can get started here: http://mayocl.in/1mtmR63

You can submit the request on her behalf. Another option is to ask her doctor to submit a physician referral.