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Profile picture for cyndiefromnc @cyndiefromnc

Thank you. I'm going to ask my rheumatologist about Actemra!

Additionally, you mentioned that you were diagnosed first with PMR before GCA. I'm a little worried about missing a GCA diagnosis. I've read and reread the symptoms for GCA and I don't have most of them. I do have an annoying, dull ache at my right temple. I have for a few months, which worries me. What symptoms did you experience that helped you diagnose GCA?

Thanks so much for your response.

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Replies to "Thank you. I'm going to ask my rheumatologist about Actemra! Additionally, you mentioned that you were..."

I have never been diagnosed with GCA. I have a different autoimmune condition that flares and can cause vision loss but it isn’t GCA. I also had a condition that caused extreme facial pain and headaches but that wasn’t GCA either.

Basically, I had every symptom of GCA but not GCA.