← Return to Any success with saline only and no meds?

Discussion
mch (Marycarol) avatar

Any success with saline only and no meds?

MAC & Bronchiectasis | Last Active: Aug 17, 2025 | Replies (37)

Comment receiving replies
Profile picture for mch (Marycarol) @mch

I’ve read similar studies about the efficacy of 7% saline. I discussed with my pulmonologist whether the saline would at least keep my infection stable. He used an analogy that the saline is like brushing your teeth; it can keep new problems from arising and perhaps current ones from getting worse. But don’t count on it alone to eradicate existing problems. I thought that was a reasonable way to look at it. I do worry that I am taking a risk by dropping all the meds if I still have an active infection. My doctor suggested trying that for six months and see what the next CT looks like. He indicated that if there was “progression“, it would likely be minimal and we could reassess at that point. I don’t really see that I have a good alternative because at best the meds are keeping me stable, and I guess that’s the big question… To what extent is that the case. But I can’t stay on these meds indefinitely if they’re not clearing the infection. So it seems like I have to try a different approach, hope for the best, and hope that in the longer term we have some new options like phage that will actually make a difference.

Jump to this post


Replies to "I’ve read similar studies about the efficacy of 7% saline. I discussed with my pulmonologist whether..."

Have you gone to NJH or Mayo or any other clinic that specializes in NTMs?

Months ago, I came across a UK study using 6% NaCl and the results were very promising. I don't recall the study duration but thinking it was a year or 2. NYU is currently looking for study participants for a new study using 7% saline for MAC treatment. It looks like the study is being managed out Of Portland, but travel to NYU-Manhattan 3 times during the study duration. The duration is only 3 months, but still it will be interesting to see results.

Also, I haven't delved into this at all, but just read about a Univ. of BC study using Benztropine (Drug used for tremors for people with Parkinsons), to lower Tuberculosis count. I'm going back to NJH next week and will ask my ID doctor about it and potential of using for those of us with NTMs. I was briefly on antibiotics and for now I am off of them. If and when I go back on the drugs, I will probably use Chinese herbs that have been tested and shown to boost the efficacy of some of the NTM antibiotics.