Update. Saw Dr Sacco. Impressed by how long she spent with me. She doesn’t believe in getting hypnic headaches. Said they are clusters and that clusters can wake you up around the same time every night too. What I feel the next day is all part of it and resembles a non aura migraine she said. I don’t necessarily agree with that because my migraines are only ever on one temple and it’s almost my entire head that hurts during the day without an “episode”
She thinks I’m coming toward the tail end of the cluster since I haven’t had an episode in a week. I’m starting a new medicine when it’s ready: Verapamil 180mg 1 tablet at night. This is a preventative for the clusters. She is also putting me on a very high dose of prednisone even though I did a dose already a week ago. I hate prednisone but I know it helps. For the daytime headaches, she gave me nurtec and immitrex shots. I have a follow up in 3 weeks. The interesting thing she said was that she doesn’t think I need to waste my money on any scans. Doesn’t think this is a secondary headache meaning it’s due to an underlying illness or problem.