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mch (Marycarol) avatar

Any success with saline only and no meds?

MAC & Bronchiectasis | Last Active: Aug 17, 2025 | Replies (37)

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Thank you all for your comments and sharing your journeys. Me: CT showed suspected MAC for 2 years, finally a positive broncoscopy and sputum test and met with ID dr at Mayo - FL. When I asked him about a study showing some positive notes for nebulizing with 7% saline, he said to talk to Pulm dr about it and maybe if I can get my count low enough my immune system can “take care of the rest”. So my question is: does this mean it’s possible to get rid of MAC withOUT antibiotics? has anyone else been told something similar? I’m doing bronchial hygiene with levalbuteral, 7% saline, Brevespi in haler, flutter valve, then huff coughing 2x per day. Feeling better overall but short of breath when I exert myself. But could be I’m just out of shape since no real exercise since bout of pneumonia in Feb. that finally led to diagnosis. I do have some bronciectasis in the lower lungs, which I know is permanent. So assuming the bronchial hygiene is part of my life forever.

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Replies to "Thank you all for your comments and sharing your journeys. Me: CT showed suspected MAC for..."

I’ve read similar studies about the efficacy of 7% saline. I discussed with my pulmonologist whether the saline would at least keep my infection stable. He used an analogy that the saline is like brushing your teeth; it can keep new problems from arising and perhaps current ones from getting worse. But don’t count on it alone to eradicate existing problems. I thought that was a reasonable way to look at it. I do worry that I am taking a risk by dropping all the meds if I still have an active infection. My doctor suggested trying that for six months and see what the next CT looks like. He indicated that if there was “progression“, it would likely be minimal and we could reassess at that point. I don’t really see that I have a good alternative because at best the meds are keeping me stable, and I guess that’s the big question… To what extent is that the case. But I can’t stay on these meds indefinitely if they’re not clearing the infection. So it seems like I have to try a different approach, hope for the best, and hope that in the longer term we have some new options like phage that will actually make a difference.