Connect
← Return to J-pouch leakage at night only: What helps to control it?
Discussion
J-pouch leakage at night only: What helps to control it?
Ostomy & J-Pouch | Last Active: Jun 7 8:43pm | Replies (28)Comment receiving replies
Hi, @janspons - the leakage you are describing would cause dread in me, too. When I had fecal leakage problems with extremely loose stools due to a medication I was taking, I would have trouble sleeping, due to dread and sheer terror. In my case, using those bed underpads gave me the confidence to go back to sleep.
How have your appointments gone so far to address this?
Replies to "Hi, @janspons - the leakage you are describing would cause dread in me, too. When I..."
Connect
@lisalucier - I do sleep on the pads as well, just in case, so I don't have to get up and change bedding, I haven't had an accident that bad yet. I usually wake up about every 2 hours during the night, sometimes good, sometimes not so good. It is exhausting, I usually get my best sleep from about 5am - 8am. My new GI wants me to stay on the vanco (plus the Tremfya) until I go back for another scope this fall. Its weird because I don't have any pain or blood, I do have some cramping occassionally and daytime is not really a problem, I wear pantiliners. But just can't get the nightly incontinence under control, it is so frustrating.