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After diagnosis, do you continue to see your neurologist?

Neuropathy | Last Active: Aug 24 9:13am | Replies (56)

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My feet were a bit numb a few years ago. My nurse practitioner had my arteries checked, then sent me to a vascular doctor. (I had told the NP I thought I had neuropathy from my research.) I had the major vein in both legs ablated. My feet were still numb. Finally I had an EEG and they sent me to a neurologist. This took considerable time and I knew the earlier caught the better chance of help. The neurologist ordered many blood samples, but came up with idiopathic. At one point he considered Marfan disease, but my family is just tall! He offered gabapentin, but since that just masks the numbness and doesn't "cure" anything, I declined. I read comments on here about ALA and R-ALA and asked him about them. He googled it (as if he'd never heard of it)! Said supplements weren't regulated and he didn't recommend using them. Said they would make an appt. for me in 6months. I said to the receptionist "You will call me in 6 months? " They never called; I didn't go back because all he ever suggested was gabapentin. That was 2023. In the last few weeks my neuropathy has gotten noticeably worse. I have a "bulge" on my spine, so I think I have a disc problem or something. I went to my GP (who is retiring) and asked about my spine and neuropathy, he said unrelated but I should go back to my neurologist. To make a long story slightly shorter, the first appt. I could get is November 7. I am frustrated, not sure what to do. I admit I still think it's spine related, but have heard some horror stories about back surgeries. I guess I'll wait until Nov., but also ask my new nurse practitioner in Sept. (since my GP retired.) Thanks for reading my experiences.

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Replies to "My feet were a bit numb a few years ago. My nurse practitioner had my arteries..."

Sorry, had an EMG, not EEG.

I have similar issue and if you are not getting the answers you need regarding spinal issues and PN, an MRI will show if your disc bulge is affecting a nerve, or spinal stenosis, and/or another issue. A neurosurgeon can tell you what’s going on. Not all back surgeries are risky, but, yes, some are. At least you will know if there is a spinal connection involved and go from there. My experience has been that neurologists only order EEGs and prescribe gabapentin or pregablin. Also, I have read many testimonials that ALA and complex B vitamins are very helpful. I am about to start the B complex and see. Then would not hesitate to try ALA even tho I’m not a supplement user.