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Do I need to deep dive diagnosis?
Neuropathy | Last Active: Aug 16 6:30pm | Replies (10)Comment receiving replies
@arcuri24 Hi Laura - No doubt, getting a second opinion is a personal decision and will insurance cover the costs. I did get an opinion at Johns Hopkings in Maryland and another opinion at Mayo in early 2020. The diagnosis from both were a match, idiopathic axonal sensory motor. I felt the second opinion was needed to put my mind at ease. At that point, I was able to close the chapter on what I have. Of course, the jury is still out on the why. Nonetheless, at that point, I decided after a second opinion it was time to learn all I could about my PN and how to best live with it. And this site this site has been a tremendous help from our mentors and those suffering with PN. Ed
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NJ Ed Thanks for sharing your views on second opinions. I was diagnosed with Celiac disease, autoimmune in nature, and that could have been the reason I have PN. I do know that since I have gone gluten-free, I am breathing easier and am no longer losing weight. I still think that the methylprednisone I took might have triggered my neuropathy. I do not think I can find out if that was the cause. So like you, I am living with PN and it does not cause pain or balance issues so in a way, I am fortunate. And, truly, this website is very informative.