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I have had an ascending aneurysm for 22 years. At no time had anyone told me that it is hereditary. My 50 year old son died of an undiagnosed dissected ascending AA.
My primary care doctor’s nurse has a sister with an AA and she was not told to have her children or siblings checked. I have written to American Heart Association, NIH, with no results. I have an easy fix. A patient would be required to use that electronic pad we frequently have to sign saying that they have been advised to have their children and siblings checked and if it was not signed insurance will not pay for the physician visit or any testing done and the patient will not be liable for the charges.
That will fix it overnight.
I have surgery scheduled for Sept 3rd.

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Replies to "I have had an ascending aneurysm for 22 years. At no time had anyone told me..."

You are shifting the blame onto the patient and not the Drs actually fully discussing the situation. This isn't something that should simply go on a digital pad that never gets written. This sound like a lawyer bovine excrement move and/or insurance company dodge. Trust me, insurance companies don't wanting you informed and getting genetically screened. Mayo doctors informed me and I am waiting on genetic test results. I went round and round with the insurance company over this to get testing. I had surgery in September and it took until May to actually get approved after going through an mediation process.