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Best hospital for severe MAC infection with many complications
MAC & Bronchiectasis | Last Active: Aug 24, 2025 | Replies (13)Comment receiving replies
@jld82 For someone in your brother's precarious state, your options may be limited to critical care settings near you - it sounds like you need to focus on his total lung conditions and CSID, so a multi-specialty setting would be best.
Do you have access to Mayo, Johns Hopkins, Stanford, NYU Langone, or another large multi-specialty hospital that offers critical care? Since his health issues are lifelong, if his insurance is through Medicaid or Medicare, you need to find a facility that accepts it.
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Thank you so much for responding. We are closest to Mayo Jacksonville. He is currently at a University Hospital which I’m sure you know is a teaching hospital (sorry I don’t want to give out exact details). He had just been referred to a new pulmonary specialist that practices at this location, so that’s the reason I took him to that hospital. He was the one that told him he had MAC but with the CSID he had lost so much weight. Approximately 60-70 lbs over the last 8 months, but now he is literally skin and bones with 2 bed sores on his bottom. I am a retired pharmacist of 10 years and haven’t practiced in 10 years, but know in his state, bed sores are a bit inevitable. Anyway, he has insurance through his wife with the school system so I don’t feel that would be a problem. I honestly don’t feel like in his current state it is safe to move him, but when he is able to be moved, would Mayo be a better choice than a large university hospital? Thanks again.