← Return to pT3b - what were your radiation outcomes after radical prostatectomy?

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Profile picture for chippydoo @chippydoo

Are you .1 with a micro PSA test? I started .03 after RP and sat at .4 for 6 months then doubled every 6 months until I hit .22 which triggered BCR and started Lupron and radiation 3 months later at .24. The good news is velocity slowed over that 3 month period. Radiation EBRT and ADT pretty much sucked for me. They did not recommend a block to protect my rectum which they hit and I developed bladder spasms. After blowing up on the table twice at the end of 4 weeks I told them I would not get back on the table until they did something for me. At $2700 a pop for each session of radiation they got me something for my urgency. I finished radiation March 7 and ADT July 14 so waiting for my first PSA/T test in September. As mentioned they hit my rectum and crapped all over myself for about a month. Couldn't make it 20' to the bathroom. ADT was manageable and I kept active albeit at a lower intensity but exercise definitely helped with ADT side effects. Some days I felt lousy and didn't push through. Last 3 months was with Orgovyx and close to a month done I am feeling much better and my energy is returning. I went anemic on Lupron and returned to normal after 3 months of Orgovyx. Not sure if that is typical but an interesting side by side comparison.

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Replies to "Are you .1 with a micro PSA test? I started .03 after RP and sat at..."

That is so unfortunate; surprised they hit the rectum so badly.
I had no spacer either (not recommended for salvage rad) but a cone beam Xray every day before tx to be sure the rectum was in the same position as during the simulation.
Minimal diarrhea at end of tx but nothing like you experienced.
Phil