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Reclast infusion

Posted by eead @eead, May 20 11:12am

I had the Reclast infusion at the end of February 2025. Since then I have had great pain in different parts of my body. I have gone from being a very active person (walking, gardening, exercising, etc.) to being unable to do most things. The pain is especially bad at night in my lower extremities, causing me to have difficulty sleeping. The pain management doctor wants me to have a spinal epidural for narrowing of the spinal and foramanal canals because the pain in my back, buttocks, thighs, and legs is so bad. Could the Reclast be causing some of this pain? If so, is there any way to reverse the Reclast?

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harborside24 | @harborside24 | Aug 10 3:27pm

Some people don't take the Claritin and just do the Tylenol. I think the Claritin reduces your chance of reacting to the Reclast medication. Everyone's body is so different, so I would do what you feel comfortable with. I did it all because years ago I had a terrible reaction to Forteo. No information was given to me prior to starting the injections, so I made sure to educate myself this time, as even the docs are not necessarily schooled on the appropriate protocol.

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dannyandebbie | @dannyandebbie | Aug 12 7:02pm
In reply to @njx58 "If someone read only the comments here, they'd conclude that there is a 100% chance of..." + (show)
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If someone read only the comments here, they'd conclude that there is a 100% chance of bad side effects with Reclast. That is not the case. That isn't to dismiss the people who have had issues, not at all, but the majority do NOT have a problem.

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You know, I do wish there were a way to actually calculate how many do have and don’t have side effects from the Reclast Infusion! It’s been 14 months…. Aches and pains are sometimes unbearable

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hopeful12 | @hopeful12 | Sep 2 1:03am
In reply to @harborside24 "I was also told to take Claritin the day before the infusion (I did two days..." + (show)
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I was also told to take Claritin the day before the infusion (I did two days before), the day of, and the day after (I did two days after) to minimize a reaction. This was in addition to the Tylenol and extra hydration. It's sad that many doctors and infusion center personnel are not familiar with what the original protocol was during the Reclast clinical trials. At least give patients the information, and they can choose whether to follow the recommendations or not.

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Hello - What strength claritin were you prescribed? the 24 hour claritin? and what dosage? (10 mg)?

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harborside24 | @harborside24 | Sep 2 7:08am
In reply to @hopeful12 "Hello - What strength claritin were you prescribed? the 24 hour claritin? and what dosage? (10..." + (show)
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Hello - What strength claritin were you prescribed? the 24 hour claritin? and what dosage? (10 mg)?

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Yes, the 24 hour, 10 mg. I started that two days before, took it the day of the infusion, and continued for 2 days after the infusion. I did the same with the Tylenol. And water, water, and more water.

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kristie2 | @kristie2 | Sep 3 11:14am
In reply to @harborside24 "Yes, the 24 hour, 10 mg. I started that two days before, took it the day..." + (show)
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Yes, the 24 hour, 10 mg. I started that two days before, took it the day of the infusion, and continued for 2 days after the infusion. I did the same with the Tylenol. And water, water, and more water.

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I’m wondering why Claritin ? Couldn’t other antihistamines work?

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harborside24 | @harborside24 | Sep 3 12:28pm
In reply to @kristie2 "I’m wondering why Claritin ? Couldn’t other antihistamines work?" + (show)
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I’m wondering why Claritin ? Couldn’t other antihistamines work?

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I’m sure they would. I just took Claritin because that’s what was suggested.

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njhornung | @normahorn | Sep 3 12:58pm

Claritin is probably suggested because it does not tend to cause drowsiness which would make driving unsafe.

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susanphilipson | @susanphilipson | Sep 3 1:34pm
In reply to @dannyandebbie "I am told by my endocrinologist that it is not the Reclast! It is quite a..." + (show)
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I am told by my endocrinologist that it is not the Reclast! It is quite a coincidence that I received an infusion and the very next day I’m experiencing Terrible symptoms and pain in both shoulders, left foot, nausea and extreme fatigue. I have had these symptoms now for 11 months! Are things improving, yes. I have been going to physical therapy at the least, bi-weekly and really try to do my exercises every other day at the least. Last visit to the endocrinologist’s pharmacist, he expressed that the Reclast is active for around 18 months and that I am covered easily until I receive my next Reclast. I shared that until it can be proven and confirmed that the Reclast did not cause this….i will not be receiving any further infusions or other medications. What is the worse that can happen, fall and break a hip; they fix them daily now. ( I would not recommend going to a teaching facility for a hip replacement, a whole new conversation after six hip surgeries).
So, I would suggest seeking physical therapy, following an exercise program, Stay busy, ( idle mind is powerful). I know it is easier said than done! Try to recall, it’s not broken because I have not fallen to create this pain! The mind is powerful and alerts us when it senses something that is going wrong. We created this pain in a way( not 100%proven one way or the other); so we need to train our brain that this pain is not life threatening and hopefully over time the pain goes away, or we teach our brain that this pain is not life threatening and it becomes less and less. I hope you can kind of understand what I am trying to say. I’m slowly feeling better and I tell myself daily that I am in control, not the Reclast! Slowly improving! Keep positive

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I have been on Reclast for 5 years, it has been great. Now I have been told that 5 years is the limit for Reclast. I have moved to Prolea but I don’t like it. Any ideas about what I can take?

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dvargo | @dvargo | Sep 3 4:09pm

You need to report this to your doctor and ask .. All side effects are documented.

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dvargo | @dvargo | Sep 3 4:11pm
In reply to @dvargo "You need to report this to your doctor and ask .. All side effects are documented." + (show)
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You need to report this to your doctor and ask .. All side effects are documented.

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These drugs are only studied for a limited amount of time. That’s why you can’t stay on them long. So once you start on one, it’s usually forever.

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