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jeff Marchi avatar

Fun with ADT and testosterone

Prostate Cancer | Last Active: Aug 11 2:06pm | Replies (33)

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In 2010 I was 62 and a biopsy showed Gleason 3+4. Had surgery, after surgery they told me it was a 4+3. It was only stage two. 3.5 Years later it came back and I had radiation. 2 1/2 years later it came back and I went on Lupron. I became castrate resistant 2.5 years later and added biclautamide. 1 year later went on Zytiga, which kept my PSA down for 2 1/2 years., After some AFIB Issues I switched over to Nubeqa, The last 20 months I’ve been undetectable. I became stage four about six years ago. I did not find out I was BRCA2 Until four years ago.

After I had radiation, it took 2 1/2 years before it came back. When it came back, I was switched from a urologist to a GU oncologist, who has guided my treatment since then.

I’ve had metastasis come up which I’ve had to zap with SBRT radiation. So I am stage four

You need to stop listening to those two doctors. They are not working in your best interest. If you have Metastasis that have not been treated, you need them treated not just sit around waiting till they get worse. Sure, the drugs will keep your PSA down But 19 is not an acceptable long-term number. Your PSA should be under 1. Your doctors are setting you up to die, Defeat them and get real treatment.

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Replies to "In 2010 I was 62 and a biopsy showed Gleason 3+4. Had surgery, after surgery they..."

Thank you so much I'm gonna contact my insurance to see if I need a referral Monday and if not when I see my urologist on Tuesday I'm gonna ask him to refer me to a GU oncologist. Thanks again