← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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Diane,
Oh my....go through with it. Our minds can play games with us. I m a nurse, i will know when it is time!! I say tell that little lady to take a nap. You wrote all the reasons it is a good reason to go.

For me, a BMB is my body telling me what the blood looks like coursing through my veins. How else would we know about blasts!! A blood infection. Not getting through a Nordstroms shopping spree. Those are all the bodies clues.
I was diagnosed low to medium. My hematologists gave me a way to look at it. Six Kathys have MDS, with no treatment 3 could be dead in less that 5 years. the other three have varying spans of time left. Noone knows. Yikes!! Did i want to watch and wait!!! I already knew i had Brca2 and a TP53 mutation. Would i be one who gets to glide along with some issues here and there?
Why do they think a BMT is right for you? I have learned that when i have a test it is summed up in a report to me in my portal. The Dr gets more in his report in medical details. April 9, 2024, was my transplant. The side effects i have are mostly the same ones from the chemo from my breast cancer.
I had a 10/10donor. You have a supportive husband and family. Ask the nurse in you to take a seat, because the patient Diane needs to do what she feels is right. Your body and your choice.

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Replies to "Diane, Oh my....go through with it. Our minds can play games with us. I m a..."

Excellent advice - I needed to hear this today! I have officially told my nurse self to sit down & be quiet. And you know, I had never looked at all those health issues I’d been having as signs I needed the SCT! I mean, it’s so obvious looking back on it!
I had breast cancer, too, 17 years ago. Dr said my MDS is ‘secondary’, meaning the chemo & radiation I had for BC most likely caused the MDS. But who really knows & at this point, what difference does it make? It is what it is.
Like you, I had very few side effects from the BC chemo & radiation. And I tolerated the Dacogen this year well. So I’m hoping, with a positive attitude, the side effects from this procedure will be well tolerated.
I feel better today thanks to you & everyone on this blog. So good to know y’all are here.