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Do I need to deep dive diagnosis?

Neuropathy | Last Active: Aug 16 6:30pm | Replies (10)

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Profile picture for arcuri24 @arcuri24

Gathering info never hurts. I am grappling with the question of seeking an opinion from a second neurologist. Beside the EMG test, did you have any blood work to rule out autoimmune diseases that might have caused your neuropathy i.e., RA, MS, fibromyalgia, etc. I also learned that many more people have neuropathy but remain silent about it, especially if they are not in any pain. This website may help you see what works for some. The disease is certainly mysterious--it came to me and to others as an unwelcome surprise but the knowledge you gain from this site and other forums will help you navigate PN and this can make a difference in other aspects of your health care and social life. I wish you the best! Laura

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Replies to "Gathering info never hurts. I am grappling with the question of seeking an opinion from a..."

@arcuri24 Hi Laura - No doubt, getting a second opinion is a personal decision and will insurance cover the costs. I did get an opinion at Johns Hopkings in Maryland and another opinion at Mayo in early 2020. The diagnosis from both were a match, idiopathic axonal sensory motor. I felt the second opinion was needed to put my mind at ease. At that point, I was able to close the chapter on what I have. Of course, the jury is still out on the why. Nonetheless, at that point, I decided after a second opinion it was time to learn all I could about my PN and how to best live with it. And this site this site has been a tremendous help from our mentors and those suffering with PN. Ed