@mch I was in your situation over 5 years ago. The meds, which I was taking daily, were causing many issues of their own. Half of my cultures are still positive for MAC. After consulting with my ID doc, who also talked to my pulmonologist, we discontinued the antibiotics. I continued using a levalbuterol inhaler or neb to open airways, followed by 7% saline twice a day.
Fast forward to today - my asthma is better controlled by a different inhaler, my bronchiectasis is stable, I have no signs of infection and I do daily airway clearance, but use much less 7% saline. In an effort to get a good specimen for testing, I have gone back to daily 7% saline. I average one exacerbation per year that requires short-term treatment.
Note - I have never proclaimed to be cured - I assume someday I will face treatment again, but I am happy with how things are going. The only thing I have never fully recovered is my energy - I must ration it or I crash.
What does your doctor think about stopping antibiotics?
Sue - My understanding, if correct, the Pulmonary Function Test will continually get worse with a continued MAC infection? Is that what you understand? My understanding, if correct, the fatigue also gets worse along with a worsening PFT? My understanding is that MAC worsens our disease, Bronchiectasis...more inflammation. As in many things, one thing affects the other????? Is that what you understand?
My PFT did slightly get worse this last test. April 2025
Barbara