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Better to be in some pain or better to up the dose of prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 21 12:56pm | Replies (80)Comment receiving replies
Yes, it seems that there is a real variation in whether it eases off or not and reading some of the posts here there are many people who have had it for many years (I’m on 3 and a bit years and taking the view that it might be a long time so trying to adjust life accordingly!)
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I was treated with Prednisone for 12 years before I was able to taper off Prednisone. Being able to taper off prednisone used to determine how long PMR lasted. That criteria needs to change because technically I still have PMR except I'm not being treated with Prednisone anymore. I have been on Actemra alone for the past 4 years.