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← Return to Just Started Actemra
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I just wanted to share an update. I've been taking Actemra infusions every 4 weeks, since January 2025. I had not experienced any side effects. I was always aware of the potential side effects. Like many of you, I picked my poison and chose Actemra over prednisone. It was a no brainer, really. I haven't had any side effects until 3 and a half weeks ago. I got Covid. First time, ever. I am fully vaccinated. Before, I acquired PMR/GCA in July 2024, I never even got a cold. Before Covid, I had just started getting back into activities that I hadn't participated in for over a year. It was a set-back. I started playing pickleball again yesterday and riding my bike. Seems like I tire more easily than before Covid. Hopefully, it will pass.
Those of you, who take Actemra, have you had an increase of upper respiratory illnesses? Do you wear an N95 mask in 'high risk' situations (indoor crowds)?
Replies to "I just wanted to share an update. I've been taking Actemra infusions every 4 weeks, since..."
Actemra was FDA approved for certain cases of Covid.
https://pmc.ncbi.nlm.nih.gov/articles/PMC8894855/
and
https://www.roche.com/media/releases/med-cor-2022-12-21
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Actemra does suppress the immune system but it is more targeted than Prednisone which broadly suppresses the immune system. I have been on Actemra alone for 4 years. I was more prone to having an infection when I was taking Prednisone for PMR
I think the greatest risk was when I was on both Prednisone and Actemra. Since being on Actemra alone ... I'm not overly concerned about an infection but I try to be careful.
I have never had Covid or at least I haven't ever tested positive for Covid. I received the initial vaccine and several boosters.
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I also caught covid after I started on Actemra (October 24) but I have fortunately not had another bout of covid or contracted other illnesses. I do try to take appropriate precautions when I hear that a virus is circulating in my community and I have refrained from large crowds since I was diagnosed. I have worn an N95 mask on occasion too but that has not been often. Blessings! ❤️