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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 3 days ago | Replies (6671)Comment receiving replies
I thought I'm doing good but......
Recently I was diagnosed with Neuropathy, and I thought I was doing good. I exercise everyday, watch what I eat, my averaged A1C for the past 5 years is 6.2, my last Lab test in June is 6.1 everything is normal: Glucose, Triglycerides, HDL, LDL, Cholesterol even my BP is normal but yet I was still diagnosed with PN last month. Burning sensation pain on rt arm, rt side of leg and upper back, I also became sensitive on warm water and sudden change temperature, it gives me chills and goosebumps. My Neuro Dr prescribe me Gabapentin and I'm already on max dosage. It's really uncomfortable, I'm just thankful that I can't still sleep at night with no trouble. Anything that you can share, I would appreciate it.
Thanks,
Mike S.
Replies to "I thought I'm doing good but...... Recently I was diagnosed with Neuropathy, and I thought I..."
What is considered max dosage. Trying to gauge how mine stacks up. Thank you.
I tried all the Meds...hated them all
I'm not taking anything other then working on the "What" is causing it...
Somethings that are triggering it ..I think
Chocolate
Alcohol
Its weird but there days when i dont have pain at all and then there days i do
Something is triggering and im going to find the solution without the drugs that dont work...only numb the problem
Ive tried R- ALA... and other herbs/vitamins and some even make it worse like nitric oxyide...anything that promotes blood flow
At this time..i work ..like mowing when its bad enough i stop get off my feet..mostly lay down for 15min or so and then im ready to go again..
Luckily my job gives me opportunities to sit here and there and it doesnt effect my job.
So im digging...trying..
I do beleive mine is COVID related
I first understood I had neuropathy in 2012 after my lower back operation. I did not understand what the problem with my feet was. I thought that the surgery had been the problem. The surgeon said my problem was neuropathy. He prescribed gabapentin at a high dose, and didn't tell me anything more. When I complained to my G.P. she did tell me that it was not curable, and prescribed two other medications. I don't remember their names, but it really messed my head up. After that my Neuropathy was not my biggest concern. I was in a fog. I couldn't make decisions and was just lackadaisical all the time. After a couple of weeks my wife couldn't take me like that anymore. My GP stopped the two meds and keep the Gabapentin. That made my head much better, but neuropathy just as bad. Eventually I tried stopping the Gabapentin all together and it was definitely worse. I went back to it, but ended up with a much smaller dose. (one 300mg capsule 4 times a day.). It has gone up my lower legs, but I am 80 years old and I have decided I will handle it. Bob
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Hello Mike @mikeyboni, Welcome to Connect. It sounds like you are staying active and trying to eat healthier which is good for anyone including those of us with neuropathy. Your description of having a burning sensation pain on your right arm, right side of your leg and upper back sounds similar to the symptoms from a pinched nerve. Here's some information from Mayo Clinic on symptoms from a pinched nerve - https://www.mayoclinic.org/diseases-conditions/pinched-nerve/symptoms-causes/syc-20354746.
Is the burning sensation pain on the right arm, leg and upper back new symptoms after being diagnosed with neuropathy or were they present when you started the treatment with Gabapentin?