Omg. Im so sorry that you have to live with this. I also have severe sensory autonomic polyneuropathy. Im in constant pain throughout my body.
Dr's are having a difficult time diagnosing the cause. Mine began in my toe in 2014, today its all over, my eyes my memory is going. I have it severely in my feet, I can no longer feel the ground and need cane or walker or I'd fall over.
My eyes began with blurring, now the light blinds and hurts my eyes. I've lost a lot of weight due to the disease. Im so weak, fatigued, anxious and lack sleep due to it.
When driving it sometimes feels like I'm in a tunnel it makes me anxious and afraid, but leaves in a couple minutes.
The severe throbbing burning pain in the legs from ankles to buttocks is so much worse when I lye did it's 24 hour pain.
Im becom a mean woman and can't seem to control my emotions.
I thought from the pain med, but have since gone off them and still can't control my feelings, mainly if something irratates me.
My hands and fingers have lost their strength, I drop things. My hand writing is beginning to be affected by it.
I cannot take the gabba, but still take it to help the pain some. It makes me feel so loopy also contributes to my imbalance.
I cannot live with this much longer. It's consuming me and has taken away all my joy, with family, friends, and all socializing.
Tell me you're still with us! I've told my family that this disease is killing me but no one seems to take the time to read up on it. They are oblivious as to why I need my cane or assistance.